Rebecca’s growth has leveled off a bit, and now the doctors are concerned that Rebecca still has an undiagnosed problem. They are consulting with experts such as “metabolic geneticists” to look at rare genetic problems among other things.
After being so excited that she was growing normally, we’re finding this news a little hard. But we’re hopeful that the news will get better (again) soon. In the meantime, we’re enjoying her very much. Besides being very small, she’s not too different from a regular full-term baby. The doctors say that she seems a little behind developmentally (apparently she should be looking at things more at her age), but overall, she’s doing very well.
With her broviac line out, she’s a lot easier to pick up etc, and we both spend a lot of time holding her and feeding her etc. Rick is the bottle expert (preemies need a different approach to bottle feeding than full-sized babies).
Michael is with his dad right now, which helps make things a little easier for us.
Thank you all for your love and prayers. We appreciate all that has been done for us very much.
Love, Jane
P.S. I forgot to mention that Rebecca hit 1500 grams a couple of days ago, which is 3 lb 5 oz. She had been hovering around 1300 for about 8 weeks, and then after she was given the antibiotics for her tummy and was also given a ton more calories/protein, she began growing better, and put on 100 grams in one week. The next week she put on about 55 grams, but that was also the week that she had her broviac taken out, and that actually has a bit of weight to it, so she put on more than it seemed. But then this week she’s leveled out a bit again, and hasn’t grown much. Rebecca is definitely a “woman of mystery,” but with everything she’s been through, she amazes everyone with her resilience.
